Heard. Understood. Me.

Current edition · April 2026

The Aletheia Voice Pack

Heard.
Understood.
Me.

The Aletheia Project’s guide to health, self-advocacy and medical dismissal for young people.

Your voice is part of your health. This pack brings together everything Aletheia has learned about helping young people understand what’s happening in their bodies, say it clearly, find their way through healthcare, hold their ground, and change things for the next person.

  1. Understand
  2. Articulate
  3. Navigate
  4. Advocate
  5. Connect
  6. Act
  7. Influence
About 50 minutes, or jump to what you need · Revised September 2026For ages 12–25
Current edition cover: Heard. Understood. Me.The words Heard, Understood and Me stacked in echoed type, circled by seven linked points representing the Aletheia loop. Heard. Heard. Heard. Understood. Understood. Understood. Me. Me. Me. CURRENT EDITION · APRIL 2026
Contents
  1. How this pack works
  2. Health 101: the words
  3. Your symptom story
  4. The appointment
  5. Fighting medical dismissal
  6. Your rights
  7. Care that fits you
  8. From me to we
  9. Your story, your voice
  10. Help and support
  11. About Aletheia

Start here

One pack, seven things you can do

This Voice Pack is a guide to your health, written by young people for young people. It exists because so many of us have sat in a doctor’s office, or lain awake at night, knowing something wasn’t right but not having the words, the information or the confidence to be heard.

It’s built around the Aletheia loop: seven things you can do to go from “something feels off” to being heard. Every tool is tagged with the parts of the loop it helps with, so you can start wherever you are. Our hope is simple: that you walk into every appointment knowing your body, your words and your rights, and walk out understood.

The Aletheia loop: seven connected capabilitiesSeven points arranged in a circle and all linked to each other and to the centre, which reads ‘you’. Clockwise from the top: understand, articulate, navigate, advocate, connect, act, influence. There is no fixed start; you can enter at whichever point you need. you 1Understand2Articulate3Navigate4Advocate5Connect6Act7Influence
  1. UnderstandKnow what’s happening and the words for it.
  2. ArticulateTurn what you feel into a clear symptom story.
  3. NavigateKnow where to go, what it costs, what to bring.
  4. AdvocateHold your ground when you’re not heard.
  5. ConnectFind people who get it, and who can help.
  6. ActTake the next step: follow-up, feedback, referral.
  7. InfluenceAdd your voice to change what others face.

What this pack is, and isn’t

It’s health education, written by young people and checked against Australian health sources (listed at the end). It isn’t medical advice, and it can’t diagnose you. It can help you get the most out of the people who can. In an emergency, call 000.

Health 101 · Understand

Language is power

There are moments when something feels wrong in your body, but you don’t know how to explain it. You say “I just feel off”, and the conversation moves on without you. Not because your experience isn’t real, but because it hasn’t been named.

This section gives you those names. Not so you can diagnose yourself, but so you can recognise patterns, ask better questions and stand your ground. You don’t need to become an expert in medicine. You only need enough language to be heard.

Your body and your cycle

Period pain

medical word: dysmenorrhoea
What it is
Cramping pain in the lower tummy, back or thighs around a period, caused by the uterus contracting. Common, especially in the teens.
What it can feel like
Aching or cramping waves, sometimes with nausea, diarrhoea or headaches.
Worth checking when
It stops you going to school or doing things, the usual pain relief doesn’t help, it’s getting worse each year, or you have pain outside your period.

You can say

  • My period pain stops me going to school, and the usual pain relief doesn’t help.
  • It’s been getting worse every year.
  • Understand
  • Articulate

Heavy menstrual bleeding

What it is
Bleeding heavy enough to affect your physical, social or emotional life. It’s common, and it can be treated.
What it can feel like
Changing a pad or tampon every 1–2 hours, bleeding through at night, clots bigger than a 50-cent coin, periods over 7 days, feeling tired or dizzy.
Worth checking when
Any of the above. Heavy periods are a common cause of low iron. Urgent: soaking a pad every hour for several hours, or feeling faint.

You can say

  • I’m changing a pad every hour or two on my heavy days.
  • Could we check my iron levels?
  • Understand
  • Articulate

Endometriosis

en-doh-mee-tree-OH-sis
What it is
Tissue similar to the lining of the uterus grows outside it, causing inflammation and pain. About 1 in 7 people assigned female at birth in Australia are diagnosed by their late 40s. It can start in the teens.
What it can feel like
Severe period pain, pain between periods, pain with bowel movements or weeing, pain during sex, fatigue.
Why it gets missed
Symptoms are often normalised as ‘just bad periods’. Australia’s national guideline puts the average delay to diagnosis at 6 to 8 years.
Worth checking when
Period pain stops your life, or pain is getting worse over time. A GP can refer you to a gynaecologist. Diagnosis may involve an ultrasound, MRI or keyhole surgery.

You can say

  • My pain affects my daily life. Could this be something like endometriosis?
  • What would it take to investigate that?
  • Understand
  • Articulate
  • Advocate

PMOS (formerly PCOS)

polyendocrine metabolic ovarian syndrome
What it is
A common hormonal and metabolic condition affecting about 8–13% of women of reproductive age. In May 2026 it was renamed from polycystic ovary syndrome, because it affects the whole body and many people with it don’t have cysts. You’ll still hear “PCOS” for a while.
What it can feel like
Irregular or missing periods, acne, extra hair on the face or body, hair thinning on the head, changes in weight or blood sugar.
Good to know
In teenagers, diagnosis needs both irregular cycles and signs of higher androgen (‘male’) hormones. An ultrasound isn’t used to diagnose PCOS until 8 years after periods start.

You can say

  • My cycle has been irregular for a long time, and I’ve had acne and extra hair growth too.
  • Could this be PMOS (PCOS)? What tests would help?
  • Understand
  • Articulate

Hormonal changes

What it is
Hormones regulate your cycle, mood, energy, skin and sleep. They shift naturally through puberty and across each cycle.
Worth checking when
Ongoing symptoms that disrupt your life: very irregular cycles, severe mood changes before periods, persistent acne, unexplained tiredness.
Good to know
‘Hormonal imbalance’ is a phrase you’ll hear a lot, but it isn’t a diagnosis. If someone says it, it’s fair to ask which hormone, and what test would show it.

You can say

  • Which hormone do you think is involved?
  • Is there a test that would show that?
  • Understand
  • Articulate

Iron deficiency

What it is
Not having enough iron. It’s common in young people with periods, especially heavy ones, and can lead to anaemia (low red blood cells).
What it can feel like
Tiredness that doesn’t lift, being short of breath, dizziness, pale skin, poor concentration, feeling cold.
Worth checking when
You’re always exhausted, especially if your periods are heavy. It’s checked with a simple blood test.

You can say

  • I’m exhausted all the time and my periods are heavy. Could we check my iron?
  • Understand
  • Articulate

Mind, brain and energy

Anxiety

What it is
Your body’s alarm system. Useful in small doses. It becomes a problem when it’s frequent, intense, or out of proportion to what’s happening.
What it can feel like
Constant worry, racing thoughts, trouble sleeping, a fast heartbeat, nausea, tight muscles, avoiding things.
Worth checking when
It’s most days, for weeks, or it stops you doing things. headspace (12–25) and your GP are good first stops.

You can say

  • I’ve felt anxious most days for a while, not just occasionally.
  • It’s affecting school and sleep. What support is there?
  • Understand
  • Articulate
  • Connect

Depression

What it is
More than sadness. A health condition affecting how you think, feel and function over weeks or longer. It isn’t a personal failure.
What it can feel like
Low, flat or numb, losing interest in things, changes in sleep or appetite, low energy, feeling worthless or hopeless.
Worth checking when
It’s lasted two weeks or more. If you have thoughts of suicide or self-harm, get help now: call Lifeline on 13 11 14, Kids Helpline on 1800 55 1800, or 000 in an emergency.

You can say

  • I haven’t felt like myself for a while.
  • I think I need support with my mental health.
  • Understand
  • Articulate
  • Connect

ADHD

What it is
A neurodevelopmental difference in how the brain regulates attention, activity and impulses. In girls it’s often the less visible, inattentive type.
What it can feel like
Losing focus, forgetting things, starting lots and finishing little, time slipping, restlessness inside, exhaustion from masking.
Why it gets missed
It can be mistaken for being disorganised, dreamy, anxious or ‘not trying’. Many girls are diagnosed later than boys.
Worth checking when
It’s been going on since childhood and affects school, work or relationships. A GP can refer you for assessment.

You can say

  • I’ve struggled with focus and organisation for as long as I can remember.
  • Could I be assessed for ADHD?
  • Understand
  • Articulate
  • Advocate

Sensory overload

What it is
When your brain gets more input (noise, light, touch, crowds) than it can process at once. Common for autistic and ADHD people, and for anyone who’s unwell, exhausted or stressed.
What it can feel like
Suddenly overwhelmed, irritable or panicky. Needing to leave, cover your ears or go quiet.
At appointments
You can ask for adjustments at appointments: a quieter room, dimmer lights, fewer people, written information.

You can say

  • I’m feeling overwhelmed by the room. Could we dim the lights or find somewhere quieter?
  • Articulate
  • Advocate

Fatigue

What it is
Persistent exhaustion that doesn’t go away with rest. Different from normal tiredness after a busy day.
What it can feel like
Waking up drained, brain fog, simple tasks taking huge effort.
Worth checking when
It’s lasted weeks, it’s affecting your life, or it comes with other symptoms. It has many possible causes (iron, thyroid, mental health, sleep, infections), so it deserves a proper look.

You can say

  • This isn’t normal tiredness. I’m exhausted even after resting.
  • Can we look for possible causes?
  • Understand
  • Articulate

When it’s long-term

Chronic pain

What it is
Pain lasting more than three months. Over time the nervous system can become more sensitive, so pain can continue even when tissues have healed. It is real pain.
What it can feel like
Constant or recurring pain that affects sleep, mood, concentration and movement.
Why it gets missed
When nothing shows up on a scan, people are sometimes told it’s ‘in their head’. Pain doesn’t have to be visible to be valid.

You can say

  • This pain has been ongoing for months and it affects my daily life.
  • Can we talk about a plan to manage it, not just the cause?
  • Understand
  • Articulate
  • Advocate

Chronic condition

What it is
A health condition that lasts a long time and needs ongoing management, like asthma, endometriosis, diabetes or depression.
Good to know
A GP can create a care plan that coordinates your care, and may give access to Medicare-rebated allied health visits.

You can say

  • This seems to be long-term. Can we make a plan for managing it?
  • Understand
  • Navigate

Inflammation

What it is
The immune system’s response to injury or infection. Short-term, it helps you heal. Long-term inflammation is part of some conditions, like endometriosis, inflammatory bowel disease and arthritis.
Good to know
‘Inflammation’ on its own is a process, not a diagnosis. Some blood tests show it, but not all inflammation shows up in them. The useful question is what might be causing it.

You can say

  • Could there be an inflammatory cause for this?
  • What tests would help show that?
  • Understand
  • Articulate

Words for the healthcare itself

Diagnosis

What it is
Working out what’s causing your symptoms, based on your story, an examination and sometimes tests. It can take several appointments.
Good to know
A doctor may give a ‘working diagnosis’ while they rule other things out. It’s fair to ask what else is being considered.

You can say

  • What could this be?
  • What else are you considering, and how will we rule it out?
  • Understand
  • Navigate

Informed consent

What it is
Agreeing to a test or treatment after understanding what it is, why it’s suggested, the risks and the alternatives. You can ask questions, take time, say no or change your mind.
If you’re under 18
Under 18, you can usually consent yourself if the doctor thinks you understand the decision (a ‘mature minor’). The exact rules vary by state.

You can say

  • Can you explain what this involves?
  • What are my options, including waiting?
  • I’d like some time to think about it.
  • Navigate
  • Advocate

Confidentiality

What it is
Health professionals must keep your information private, except in limited cases, such as a serious risk of harm.
If you’re young
From 14, Medicare generally needs your consent before releasing your claims information to parents. From 15 you can have your own Medicare card.

You can say

  • Will this stay confidential?
  • Is there anything you’d have to share, and with whom?
  • Navigate
  • Advocate

Implicit bias

What it is
Assumptions people hold without realising, which shape whose pain is believed and what gets investigated. In Victoria’s Inquiry into Women’s Pain, one in three women said they’d felt dismissed or unheard by practitioners.
Why it matters
Bias isn’t always intentional, but it has real effects. Recognising it can help you see that being dismissed isn’t about you.

You can say

  • I don’t feel my concerns have been fully understood yet.
  • Can we take another look at my symptoms?
  • Understand
  • Advocate
  • Influence

Referral

What it is
A letter from your GP to a specialist or service. For most specialists you need one to get a Medicare rebate.
Ask about
Ask why, who, how much it costs, how long the wait is, and how long the referral lasts. Public clinics may cost less but have longer waits.

You can say

  • Would a specialist help here?
  • Is there a public option, or someone closer?
  • Navigate
  • Act

Second opinion

What it is
Seeing another health professional about the same issue. It’s a normal part of healthcare and doesn’t need anyone’s permission.
Good to know
You can ask for copies of your test results to take with you.

You can say

  • I’d like a second opinion.
  • Could I have a copy of my results?
  • Advocate
  • Act

Self-advocacy

What it is
Speaking up for your needs and your health. It isn’t about being loud or perfectly confident. It can be one question, one pause, one “I don’t understand”.

You can say

  • This is important to me.
  • I’d like to understand this better.
  • Advocate

Articulate

Your symptom story

Doctors think in patterns: what, where, when, how much. Turn what you’re feeling into six short lines and you can say it in thirty seconds, even when you’re nervous.

The symptom story: six lines that turn a feeling into informationA card with six labelled lines and an example for each. What: sharp, cramping pain. Where: low tummy, left side, into my back. When: first two days of every period for 18 months. How much: usually 6, worst 9, missed five school days this term. So far: ibuprofen helps a bit, heat pack, not enough. I want: to find out why and a plan that works. My symptom story6 lines · 30 seconds WHATSharp, cramping painWhat it feels like, in your wordsWHERELow tummy, left side, into my backUse the body map numbersWHENFirst 2 days of every period, for 18 monthsStart, pattern, how longHOW MUCHUsually 6, worst 9. Missed 5 school days this termYour number AND what it stopsSO FARIbuprofen helps a bit. Heat pack. Not enoughWhat you’ve triedI WANTTo find out why, and a plan that worksWhat you need from today
Write yours on your phone or in the Self-Advocacy Journal and read it out. Reading from notes is completely normal.

What & where

Use feeling words: cramping, sharp, burning, throbbing, dragging, pressure. Then the exact place, and whether it spreads.

  • Sharp, low on the left, into my back.

When & how much

When it started, when it happens, how long it lasts. Give your usual number and your worst number, plus what it stops you doing.

  • Usually 5, worst 8. I miss the first day of school.

So far & I want

What you’ve tried, and what you need today: an explanation, a test, a plan, a referral, or to be believed.

  • I’d like to find out what’s causing it.

Scoring pain by what it stops you doing

Pain scale from 0 to 10 with what each level lets you doA scale numbered 0 to 10. Each even number is paired with what the pain stops you doing: 0 no pain; 2 you notice it but carry on; 4 distracting and you need a break; 6 hard to focus or move; 8 you have to stop and lie down; 10 the worst you can imagine. Rate what the pain stops you doing, not just how it feels. 012345678910 No painNotice it,carry onDistracting,need a breakHard to focusor moveHave to stopand lie downWorst I canimagine Give your usual number AND your worst: “Usually 4, at worst 8.”

Track it for two or three cycles

A few weeks of notes turns “it’s bad sometimes” into a pattern anyone can see. Track bleeding, pain, mood, energy and missed days. The Self-Advocacy Journal has a tracker built in.

Navigate

Before, during, and after the appointment

Healthcare can feel confusing, not because it’s impossible to understand, but because nobody teaches you how it works. Knowing where to go, what it costs and what to bring changes the whole experience.

Appointment flow: before, during, before you leave, afterFour connected stages. Before: write your symptom summary, decide your top one to three concerns, book a longer appointment if needed, choose a support person. During: lead with your main concern, use your summary, ask what it could be, repeat back what you heard. Before you leave: ask the plan, what to watch for, when to come back, and whether it can be written in your notes. After: write down what was said, keep tracking, book the follow-up, and take the next step if it isn’t better. 1 Before Write yoursymptom summaryDecide your top1–3 concernsBook a longerappointment ifneededChoose a supportperson (optional) 2 During Lead with yourmain concernUse your summary:what, where,when, how muchAsk: “What couldthis be?”Repeat back whatyou heard 3 Wrapping up What’s the plan?What should Iwatch for?When do I comeback?Can this bewritten in mynotes? 4 After Write down whatwas saidKeep trackingBook thefollow-upNot better? Takethe next step

Where to go

Map of where young people can go for care in AustraliaYou are at the top. You can go directly to a GP, headspace (ages 12 to 25), a sexual health clinic or community health. From a GP you can be referred to a specialist, or to a psychologist with a mental health treatment plan; headspace can also connect you to psychology. For quick or urgent help you can also go straight to a pharmacist, an Urgent Care Clinic, or in an emergency a hospital emergency department or 000. You GP / youth GPfirst stop for most thingsheadspaceages 12–25, no referralSexual health clinicconfidential, often freeCommunity healthusually no referral Specialistvia GP referralPsychologistGP plan = Medicare rebate Dashed line: go directly.Solid line: usually via a referral or plan. QUICK OR URGENT HELP, STRAIGHT FROM YOU Pharmacistadvice, no appointmentUrgent Care Clinicwalk in, not life-threateningHospital ED / 000serious or emergency
For the full map, costs and what to bring, see the Aletheia Health Navigator.
Costs and access in Australia
QuestionThe short answer
Will it cost anything?Bulk-billed GPs charge Medicare directly, so you pay nothing. Private billing means paying up front and claiming part back. Ask when you book: “Do you bulk bill young people?”
Do I need a Medicare card?It helps. From 15 you can get your own. Many sexual health clinics and headspace centres can see you without one.
How do I get rebated psychology?Your usual GP can make a Mental Health Treatment Plan, which gives Medicare rebates for up to 10 individual sessions a year. headspace doesn’t need a referral.
What if I need an interpreter?Ask when booking. GPs can book one for free through TIS National.
Can I do it by phone or video?Yes. Telehealth works well for follow-ups, results and mental health appointments.

Booking

  • I’d like a long appointment. I have a few things to discuss.
  • Do you bulk bill?
  • Could I see a female GP?

Before you leave

  • What’s the plan?
  • What should make me come back sooner?
  • Could you note this in my file?

Advocate

When you’re not heard

You might walk out of an appointment knowing something wasn’t right. Maybe you were interrupted, rushed, or told it was “just stress” before anything was explored. That feeling matters.

Medical dismissal isn’t always obvious. It can sound polite. It can come from people who mean well. This section isn’t about confrontation. It’s about clarity: for each moment, what might be going on, what you can say, and the next move. Say it quietly or firmly, however feels natural. Advocacy doesn’t look one way.

If you hear“It’s probably just stress.”

What might be going on

Stress does affect the body. But it’s sometimes offered before physical causes are checked.

You can say

“I understand stress can play a role. I’d still like to rule out physical causes.”

“What would you want to check before putting this down to stress?”

Next move

Ask what would change their mind, and when to come back if it doesn’t improve.

If you hear“That’s normal.”

What might be going on

Something can be common and still not be manageable for you.

You can say

“I know it may be common, but it isn’t manageable for me.”

“At what point would this need investigating?”

Next move

Describe what it stops you doing. Impact is harder to dismiss than a number.

If you hear“You’re overreacting.”

What might be going on

How calm you seem says nothing about what you’re feeling.

You can say

“It feels significant to me, and it’s affecting my life.”

“I’d like to focus on the cause rather than my reaction.”

Next move

Ask for your concern to be noted in your file.

If you hear“You’re too young for that.”

What might be going on

Many conditions, including endometriosis, PMOS (PCOS), ADHD and depression, can start in the teenage years.

You can say

“I understand I’m young, but this is affecting me now.”

“Can we look into it properly, regardless of my age?”

Next move

Bring your tracker: a pattern over months is hard to wave away.

If you hear“It shouldn’t hurt that much.”

What might be going on

Pain is personal. It doesn’t have to match anyone’s expectations to be real.

You can say

“I’m not asking you to agree with the level of pain. I’m asking for help understanding it.”

“It’s consistent, and it’s getting worse over time.”

Next move

Use your symptom story, and ask what else it could be.

If you hear“Okay, so we’ll just—” (you feel rushed)

What might be going on

Appointments are short. Important details get lost when things move too fast.

You can say

“I don’t feel I’ve explained everything yet.”

“Could we book another appointment to go through this properly?”

Next move

Next time, book a long appointment and lead with your main concern.

If you hear(You’re interrupted mid-sentence.)

What might be going on

Interruptions are common in busy clinics, and can cut off key information.

You can say

“I’d like to finish explaining this before we move on.”

“There’s one more part that I think is important.”

Next move

Keep your notes in front of you, and go back to where you stopped.

If you hear“Let’s just wait and see.” (you’re not taken seriously)

What might be going on

Waiting can be reasonable, but only with a plan.

You can say

“This has been affecting me consistently. It’s important to me that we look into it.”

“What are we watching for, and when do I come back?”

Next move

If you still feel unheard, ask for a second opinion.

If you hear(Medical words you don’t understand.)

What might be going on

Clinicians use shorthand. It’s their job to make sure you understand.

You can say

“Could you explain that in simpler terms?”

“So, just to check, you’re saying… Is that right?”

Next move

Ask for it in writing, or for something you can read at home.

If you hear(You feel intimidated.)

What might be going on

There’s a power imbalance in the room. You don’t have to perform confidence.

You can say

“I’d like to ask a few questions before we continue.”

“I need a moment to process this.”

Next move

Bring a support person, or ask to pause and come back.

If you hear“So, shall we go ahead?” (you’re not ready)

What might be going on

Most decisions aren’t urgent. You’re allowed time.

You can say

“I’d like some time to think before deciding.”

“Is there any risk in waiting a little?”

Next move

Take the information home, look it up on a trusted site, and come back with questions.

If you hear(The appointment isn’t in your language.)

What might be going on

You have a right to understand your care. GPs can book a professional interpreter for free.

You can say

“I would like an interpreter for this appointment.”

“Can we speak without my family translating?”

Next move

Ask when you book, so the interpreter is ready. TIS National is 131 450.

If you hear(The way it’s explained doesn’t work for you.)

What might be going on

If you process information differently, the standard format may not fit.

You can say

“I may need more time to process this.”

“Could you explain it step by step, and write it down?”

Next move

Ask for reasonable adjustments when you book.

If you hear(You want it on the record.)

What might be going on

Notes create a timeline, and make the next appointment faster.

You can say

“Could you please include that in my medical record?”

“I’d like this concern to be noted.”

Next move

Keep your own record too: date, what you said, what they said.

If you hear“I don’t think we need tests.”

What might be going on

Sometimes true. But you can ask for the reasoning.

You can say

“Is there anything that would help us understand this better?”

“I’d feel more comfortable ruling out possible causes first.”

Next move

Ask what would make testing appropriate, and note the answer.

If you hear“Come back if it gets worse.”

What might be going on

Without a clear plan, it’s easy to fall through the gaps.

You can say

“What should I do if this doesn’t improve?”

“How long should I wait before coming back?”

Next move

Book the follow-up before you leave the clinic.

If you hear(You still don’t feel it’s resolved.)

What might be going on

A second opinion is a normal and responsible part of care.

You can say

“I’d feel more comfortable getting a second opinion.”

“Could you refer me to another specialist?”

Next move

Take copies of your results and your symptom story.

Being taken seriously isn’t something you earn. It’s something you’re entitled to.

Navigate · Advocate

Your rights in the Australian system

The Australian Charter of Healthcare Rights applies to everyone getting care in Australia, whatever their age. Knowing it turns “I hope they’ll listen” into “I’m entitled to be involved”.

The seven rights and what they mean for you
RightWhat it means for you
AccessHealthcare that meets your needs, including interpreters and adjustments.
SafetyCare that’s safe, in a place where you feel safe.
RespectBeing treated with dignity, with your culture, identity, beliefs and choices respected.
PartnershipAsking questions and being involved in decisions, with support people if you want them.
InformationClear information about your condition, options, risks and costs, in a way you understand.
PrivacyYour personal and health information kept private and confidential.
Give feedbackCommenting on or complaining about your care, and having it taken seriously.

Consent

You can ask what a test or treatment involves, why, the risks and alternatives. You can take time, say no, or change your mind. Under 18, you can usually consent yourself if you understand the decision; the rules vary by state.

Confidentiality

What you say is private, with limited exceptions such as serious risk of harm. From 14, Medicare generally needs your consent to share claims with parents; from 15 you can have your own card. Sexual health clinics are confidential and often free.

If something went wrong

  1. Raise it with the clinician or practice

    If it feels safe. Ask for the practice manager if you prefer.

  2. Put it in writing

    What happened, when, and what you’d like done. Keep a copy.

  3. Go to your state’s health complaints body

    It’s free. In Victoria, that’s the Health Complaints Commissioner. Complaints are also how services find patterns and change.

Connect

Care that fits who you are

Culture, language, gender, sexuality, disability and age shape how people are heard. Good care adapts to you. Here’s what you can ask for.

Culturally and linguistically diverse

Ask for a professional interpreter, free at GP appointments. It’s okay to see a doctor without family present. If health is taboo at home, confidential services exist for exactly this.

  • Can we speak without my family translating?

LGBTQIA+

You choose what to share. You can correct your name and pronouns, and ask if a service is inclusive. QLife (1800 184 527) offers peer support.

  • I use ___ pronouns.

Aboriginal and Torres Strait Islander

Aboriginal Community Controlled Health Organisations offer culturally safe care, run by community. 13YARN (13 92 76) is 24/7 crisis support.

Neurodivergent or disabled

Ask for adjustments: more time, a quiet room, written information, step-by-step explanations, a support person.

  • Could you write that down for me?

Young

Your age is a reason to be thorough, not to stop looking. You can see a GP on your own, and ask to speak alone for part of an appointment.

  • Could I have some time with the doctor on my own?

Faith and family

You can ask for care that respects your beliefs, like a doctor of a particular gender, or modesty during an examination.

  • Is it possible to see a female doctor?
In their wordsWhy care has to fit the person

“Even when I taught my mum the word ‘endometriosis’ in English, it didn’t land. In Spanish, she still just says ‘dolor de mujeres’ — women’s pain. It’s like the word doesn’t stick if the culture doesn’t have space for it.”

25, Colombian-Australian queer woman

“When I came out, I realised my family had no language for queer bodies. So I brought books, podcasts, TikToks to the dinner table. At first it was awkward, but now my mum asks questions. We’re both unlearning the silence together.”

23, queer Australian

Shared with Aletheia and first published on our blog in Words we don’t translate and Body literacy through generations. Names removed.

Act · Influence

From me to we

Every time a young person is dismissed, it affects them. When it happens to thousands, it tells us something about the system. Aletheia exists to connect the two: to help you get care today, and to turn what young people go through into evidence that changes what the next person faces.

From me to weFour stages from left to right. Me: one dot, my experience. Us: a few dots, others have this too. Evidence: many dots in a grid, a pattern we can show. Change: a dot inside a building outline, a decision that shifts. Memy experienceUsothers have it tooEvidencea pattern we can showChangea decision shifts

The evidence

13,000+

responses to Victoria’s 2024 Inquiry into Women’s Pain, where one in three women said they’d felt dismissed or unheard.

The evidence

6–8 years

average delay to an endometriosis diagnosis in Australia, with symptom normalisation named as a key cause.

The response

Youth voice

Young people’s experiences, gathered safely and shared with decision-makers, are how that pattern starts to shift.

Sharing your story safely

  • I’m sharing because I want to
  • I know where it will go and who will see it
  • I’ve chosen my name, first name only, or anonymous
  • I’ve left out details that identify other people
  • I can review or withdraw it before publishing
  • I have someone to talk to afterwards

Where your voice goes at Aletheia

These are the structures we’ve built so young people’s experience reaches the people who make decisions:

You’re not just reading this. You can help write the next one.

Every Voice Pack is shaped by young people. Join the resource development or translation teams, or tell us what should be in the next edition. See all the ways to get involved.

Reflect

Your story, your voice

There are so many places where you’re expected to have answers. This isn’t one of them. Your experience doesn’t need medical language, or to sound “serious enough”. It only needs to be yours.

Write here, think here, or leave it blank. The moment you start putting your experience into words, you’re no longer carrying it alone.

Page 1

What have you been told about your body?

  1. What have you been told is normal?
  2. What have you been told isn’t worth mentioning?
  3. What has your body been telling you, despite that?
Page 2

What do you wish someone believed?

  1. Something physical: a pain that never fully went away?
  2. Something emotional: a weight you carried quietly?
  3. Something you’re still trying to understand?
Page 3

What does your body feel like today?

  1. Is there tension, heaviness, lightness, discomfort anywhere?
  2. Is there something you’ve been ignoring?
  3. What would you tell a doctor about today?
Page 4

What does advocating for yourself look like?

  1. What feels manageable right now: one question? Writing things down?
  2. Who could back you up?
  3. What would you say if your voice shook?
Page 5 · New in this edition

What would you change for the next person?

Your experience can make it easier for someone else. What would you want a doctor, a school or a government to understand?

  1. One thing I wish had been different…
  2. Who could change it…
  3. One small step I could take…

Support

When to get help, and where

Most things in this pack are about everyday care. Some things can’t wait. Know the difference.

Everyday

Keep an eye on it

  • New symptoms that are mild
  • Things you want to understand better
  • Track it, and see a GP if it keeps up
Book a GP

Worth an appointment

  • Symptoms stopping school, work or plans
  • Pain or bleeding getting worse
  • Low mood or anxiety most days for two weeks or more
  • Anything that worries you. That’s reason enough.
Urgent · 000

Get help now

  • Sudden, severe pain
  • Very heavy bleeding with dizziness or fainting
  • Trouble breathing, chest pain
  • Thoughts of suicide or harming yourself, or someone else is in danger
Emergency000If you or someone else is in danger or needs urgent medical help.
Kids Helpline1800 55 1800Free, 24/7 phone and webchat, ages 5–25.
Lifeline13 11 1424/7 crisis support. Text 0477 13 11 14.
headspaceheadspace.org.auFree or low-cost support, ages 12–25.
13YARN13 92 7624/7 crisis support by Aboriginal and Torres Strait Islander people.
QLife1800 184 527LGBTIQ+ peer support, 3pm–midnight.
healthdirect1800 022 22224/7 nurse advice: is this urgent, and where should I go?
TIS National131 450Free interpreting, when you need to talk to a service in your language.
Beyond Blue1300 22 463624/7 mental health support.
1800RESPECT1800 737 73224/7 support for sexual, domestic and family violence.
Butterfly Foundation1800 33 4673Support for eating disorders and body image.
Suicide Call Back Service1300 659 46724/7 counselling for anyone affected by suicide.

The Aletheia Project

What Aletheia is, and why we exist

The Aletheia Project is a youth-led not-for-profit. It exists because of a gap many young people feel but can’t always name: the gap between having access to healthcare and actually knowing how to use it.

Aletheia is Ancient Greek for truth. We’re not here to replace healthcare. We’re here to strengthen your position in it, and to make sure young people’s truth reaches the places where decisions get made.

Health literacy

Understanding your body, and the language for it.

Self-advocacy

Being able to speak, ask and hold your ground.

Systems change

Young people shaping the services and policies that affect them.

Contact

Get in touch

contact@thealetheiaproject.org · thealetheiaproject.org · @aletheia.au

Want printed copies for your school or organisation? Email us. Want to see how we got here? Explore the Voice Pack Archive.

Your body is yours. You’re allowed to question it, understand it, and speak about it. And when you do, you already begin to change it.

The Aletheia Project, 2026